- Life Is So Precious
- April 16th, 2014
I'm shaking as I'm writing this, and I can't stop the tears from flowing, we nearly lost our son, Daniel, early Tuesday morning. Thankfully, my angel is still with us, but I can't believe how close we came.
He's type 1 diabetic and insulin dependent and in the early hours of Tuesday I heard a strange noise from his room, just the one sound, but one I'd never heard the likes of before, like a cross between retching and struggling to breathe.
I immediately went to him and he was fitting and foaming at the mouth, eyes rolled back in his head, I've never been so scared in my life before. I moved things out the way, called my husband to be with him and called the emergency services. The paramedic came within 10 minutes and funnily enough it was the same one who came to the school the previous week when the school were concerned about his blood glucose reading being high and not coming down.
He came round incredibly slowly, not recognising any of us and was very confused and disorientated.
Between us the paramedic and myself managed to get a blood glucose reading and he was low at 4, normal is 7. but the paramedic felt he was taking too long to respond and advised us to give him a glucagon injection, this releases a different kind of sugar stored in the body to bring his glucose levels up quickly, but to get him stabilised we needed him to eat or drink something within 30 minutes or else he would plummet down again, but we couldn't get him to eat and he kept complaining he was going to be sick.
The ambulance took him straight to hospital A&E, where he was monitored for a few hours, but he was going down again, we had to get a whole 380ml bottle of Lucozade into a very sleepy and dopey 13 year old, it was very hard and took over half an hour of persuasion and cajoling but we did and he came up briefly then went down again, eventually he was moved to a children's admittance ward for assessment and stabalisation when a bed became available.
They confirmed it was all related to his diabetes as was suspected and requested a bed on the children's diabetes ward which took forever as a bed wasn't available. But our Diabetes doctor, Dr. Greening, was there and came down to see him and get to the root of the problem. He is such a fantastic doctor and I'm so glad we're with him and he knows Daniel so well.
He quickly established the cause of the fit, it was a number of factors; he's entering puberty, his insulin sensitivity is less, Daniel wasn't administering his insulin efficiently and some was not getting into his body, but leaking out. As a result, his insulin needs had been increasing to try and keep his blood glucose in the correct range, which turned out to be far too much compared to his body weight; it was the excess of a slow acting 24 hour insulin he has once a day that had built up and sent him dangerously low, causing the fit which in turn triggered his body to release the sugar stored in his body.
It was at this time that Dr. Greening said that if I hadn't heard him and gone in and got things moving as quickly as I had we would very likely have lost him, the fact that he'd been fitting was a sign that things were very bad.
He's still in hospital now and has a bed on the diabetes ward, I've stayed with him overnight and will do again tonight, but the diabetes team have been absolutely wonderful in sorting his insulin needs out, he is on 2 hourly obs for the next 24 hours so they can see if the new regime is working how they expect it to.
Daniel himself is back to normal, it's as though nothing happened that night, almost like a dream, but I just can't stop thinking what would have happened if I hadn't of heard him. I'm almost frightened to sleep again in case I don't hear him and can't get him the help he needs in time. I'm glad that at the moment we're in the right place and I've got a collapsible bed right next to him so I can see and hear he is okay.
Daniel doesn't remember any of it, but it's something I'll never be able to forget, but I thank God that he's still with us.